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Mucoviscidose - L'Espace du Souffle
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La mucoviscidose

Qu'est ce que c'est ?

La mucoviscidose est une maladie génétique héréditaire caractérisée par l'épaississement des sécrétions de plusieurs organes, essentiellement les poumons et le pancréas , ce qui altère leur fonctionnement

Nous vous accompagnons à chaque étape

Réseaux Asthme & Urgences: Mise en place d’une intervention d’Éducation Thérapeutique commencée aux urgences pendant le temps de la prise en charge médicale de la crise et poursuivie à la sortie du patient lors de 5 séances d’ETP proposées et réalisées gratuitement à l’Espace du Souffle.

Réseau Médecine du travail : Médecins du travail et infirmière du travail se retrouvaient parfois face à des patients atteints de maladies respiratoires mal contrôlées avec des patients ayant besoin d'un accompagnement dans leur PEC. Nous pouvons désormais accompagner les travailleurs ayant besoin d'aide pour améliorer leur maladie dans le cadre professionnel.